The TMA Children’s and Family Workshop The Workshop: A Teen’s Perspective Eve Hampton This past July I was privileged to attend The Transverse Myelitis Association’s first Children’s and Family Workshop.  This opportunity allowed for parents, children and young adults living with Transverse Myelitis to learn more about many issues ranging from medical, to educational, to emotional.  During the program young children were able to listen to stories and participate in arts and crafts. However, the part of the workshop that impacted me personally the most was the chance to meet other teenagers and young adults with similar experiences.  Through discussions and activities we learned how each of our experiences with Transverse Myelitis was different, as well as the similarities we shared.  Despite the fact that TM had impacted each of us differently we all shared a common bond.  The idea that I was not the only one going through this reassured me.  Additionally, as one of the teenagers with TM, it gave me a chance to see the effect the disease and its aftermath have on siblings.   The workshop allowed the parents to attend presentations by expert physicians, educators, and adults who had contracted TM as children.  Young children went to a science museum and to the Columbus Zoo, listened to stories, watched movies, and enjoyed arts and crafts while the presentations were in session.  The teenagers, including me, spent the days enjoying sailing, kayaking, swimming, and other activities while getting to know each other.  In defiance of the lack of wind, we were able to sail and I can say without hesitation that it was my favorite recreational activity.  The feeling I had while being on the water, away from my wheelchair and without limitations, was incomparable. Although the activities we participated in gave us a chance to have fun while learning about one another, the discussion amongst the teens left the most lasting impression on me.  Those of us with TM were able to share our adventures in the world of paralysis, including how we felt initially and how our feelings have changed since.  For me, as a teenager with TM with a teenage brother who has had to adjust, it was great to hear stories from siblings.  Their words changed the way I felt.  I had no idea how much of an impact TM could have on a brother’s or sister’s life.  Looking back on my own experience, I can see how much time and attention was devoted to me, especially during my initial hospital stay.  I can only imagine what my brother was going through.  He must have felt so lost amongst the confusion. I hope that I will have a chance to see the people who changed my life at the next Transverse Myelitis Association’s Children’s and Family Workshop.

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