The Transverse Myelitis Association is developing a Children's and Family Network Directory that will only be provided to parents of children with TM. The purpose of the Children's and Family Network Directory is to provide a safe means for parents to support other parents and for parents to find other children for their children to communicate with and build friendships/supports with peers. Please note that the Children's and Family Network Directory is still under development and has not yet been published. Our goal is to also publish annual updates to this directory. This directory will only be sent to those TMA members who have registered for and are included in this directory. We know there is a need for this information, because it is frequently requested from both parents and children. Please take the time to send us the following directory information:

Parents' Names
Street Address
City, State/Province
Country, Zip or Postal Code
Home & Work Phone & Fax
Parents' Email Address

Child's Name
Child's Email Address
Child's Age at Onset of TM
Year of Onset of TM
Spinal Cord Level of Effect

Thus far, only 26 families have responded for inclusion in the Children's Directory. I have been waiting for a response that reflects more closely the numbers of children in our membership that have TM. In waiting for so long to increase the value of this directory by including more networking opportunities, I have been withholding this resource from those who need it. For that, I am truly sorry. The publication of this directory is of the highest priority for the TMA. After waiting for a short time for a reply from this newsletter request, the children's directory will be published and mailed to those families who have provided us with their child's information. We sincerely apologize for the delay.

You can send the information to Sandy Siegel either through the postal service or the Internet.